One of the biggest misunderstandings around pacing in ME/CFS is that it’s only about being careful. Avoiding PEM matters. Stabilizing matters. But if pacing is only about preservation — with no strategy for expansion — it eventually becomes a waiting game. You’re just waiting for the moment life inevitably pushes you outside your baseline. Because life will happen. A medical appointment. An illness in the house. A loss, a stressor, something you can’t opt out of. And when pacing is centered enti
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