This May, The Cute Syndrome Foundation proudly celebrates 12 years of impact, dedication, and hope. All month long, we’re spotlighting the groundbreaking research made possible by TCSF Grant recipients. Their work brings us closer to a brighter future for those affected by SCN8A. Want to be part of the progress? Support projects like these by donating at givebutter.com/tcsf12. ________________________________ 🔬 In this video, Dr. Chris Dulla and Dr. Madeleine Oudin of Tufts University discuss t
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303 viewsMay 14, 2025
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Announcing the 2026 International SCN8A Awareness Day theme: UNSTOPPABLE The SCN8A community is unstoppable. Even in the face of fear, exhaustion, and heartbreak, we keep going. We advocate, we adapt, we endure, we overcome, and through it all, we live and love fiercely. No two SCN8A journeys are the same, but we are united by courage, resilience, and the refusal to stop hoping for a brighter tomorrow. This year, we invite you to share what unstoppable means to you. Celebrate the victories. Hono
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Announcing the 2026 International SCN8A Awareness Day theme: UN…
871 views5 months ago
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International SCN8A Awareness Day is February 9th! This year, our awareness theme is two simple, short, yet powerful words – “I Am.” No two SCN8A journeys are alike, so we invited SCN8A warriors and families to fill in the blank and share their unique stories with the world! McKenzie, USA: #IAmMcKenzie #IAmStrong #IAmSmiley We're kicking off this year's SCN8A Awareness celebration with McKenzie. In this video, McKenzie and her friends and family share all the things that make her special! #SCN8A
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It's National Volunteer Week! The Cute Syndrome Foundation would like to extend our gratitude to all of our amazing volunteers. Volunteers, we are so grateful for your hard work, dedication and support. Our organization is better because of everything you do! 💜 | SCN8A The Cute Syndrome Foundation
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Addy, USA: #IAmPerfectlyMe This video highlights SCN8A Warrior Addy's amazing bravery, resilience, and sweetness in the face of countless challenges throughout her life. Addy defines herself as strong, proud of herself, loved, and a good friend! #SCN8AAwareness #InternationalSCN8AAwarenessDay #SCN8AStrong #SCN8A #IAm #SCN8AAwareness2025 | SCN8A The Cute Syndrome Foundation
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Addy, USA: #IAmPerfectlyMe This video highlights SCN8A Warrior A…
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💜 Unstoppable: Wade, USA "Wade never gives up. He may move a little slower and his goals may be a little different than others but his momentum is always forward. His beautiful soul shine truly is UNSTOPPABLE!" #scn8aawarenessday #internationalscn8aawarenessday #scn8a #scn8awarrior #scn8astrong #unstoppable | SCN8A The Cute Syndrome Foundation
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